Cystic fibrosis - phepo e nepahetseng

Cystic fibrosis (CF) ke lefu le sokelang bophelo le bakang mamina a teteaneng, a khomarelang ho aha matšoafong le tšilong ea lijo. Batho ba nang le CF ba hloka ho ja lijo tse nang le lik'hilojule tse ngata le protheine letsatsi lohle.

Manyeme ke setho ka mpeng kamora mpa. Mosebetsi oa bohlokoa oa manyeme ke ho etsa li-enzyme. Li-enzyme tsena li thusa 'mele ho cheka le ho monya liprotheine le mafura. Ho bokellana ha mamina a manyeme a tsoang CF ho ka baka mathata a tebileng, ho kenyelletsa:

• Mantle a nang le mamina, a nkha hampe kapa aa phaphamala
• Khase, ho ruruha kapa mpa e senyehileng
• Mathata a ho fumana liprotheine, mafura le likhalori tse lekaneng lijong

Ka lebaka la mathata ana, batho ba nang le CF ba ka ba le bothata ba ho lula boima bo tloaelehileng. Esita le ha boima ba 'mele bo tloaelehile, motho a ka' na a se ke a fumana phepo e nepahetseng. Bana ba nang le CF ba kanna ba se ke ba hola kapa ba hola ka nepo.

Tse latelang ke litsela tsa ho eketsa liprotheine le likhalori lijong. Etsa bonnete ba hore u latela litaelo tse ling tse ikhethang ho tsoa ho mofani oa tlhokomelo ea bophelo.

Li-enzyme, livithamini le letsoai:

• Batho ba bangata ba nang le CF ba tlameha ho nka li-enzyme tsa pancreatic. Li-enzyme tsena li thusa 'mele oa hau ho monya mafura le liprotheine. Ho li nka ka linako tsohle ho tla fokotseha kapa ho felise litulo tse nkhang hampe, khase le ho ruruha.
• Nka li-enzyme ka lijo tsohle le lijo tse bobebe.
• Bua le mofani oa hau ka ho eketsa kapa ho fokotsa li-enzyme tsa hau, ho latela matšoao a hau.
• Botsa mofani oa hau mabapi le ho nka livithamini A, D, E, K le khalsiamo e eketsehileng. Ho na le mekhoa e khethehileng bakeng sa batho ba nang le CF.
• Batho ba lulang libakeng tse chesang ba ka hloka letsoai le lenyenyane la tafoleng.

Mekhoa ea ho ja:

• Ja ha u lapile. Sena se ka bolela ho ja lijo tse nyane tse 'maloa ho pholletsa le letsatsi.
• Boloka mefuta e fapaneng ea lijo tse bobebe tse bobebe. Leka ho ja ntho e 'ngoe le e' ngoe hora e 'ngoe le e' ngoe, joalo ka chisi le li-crackers, li-muffin, kapa li-trail mix.
• Leka ho ja khafetsa, leha e ka ba ho longoa feela. Kapa, ​​kenyelletsa tlatsetso ea phepo e nepahetseng kapa milkshake.
• Tenyetseha. Haeba u sa lapa nakong ea lijo tsa mantsiboea, etsa lijo tsa hoseng, lijo tse bobebe tsa hoseng, le lijo tsa mots'eare lijo tsa hau tsa mantlha.

Ho fumana lik'halori le liprotheine tse ngata:

• Kenya chisi e halikiloeng ho sopho, lisose, li-casseroles, meroho, litapole tse khotliloeng, raese, li-noodle kapa bohobe ba nama.
• Sebelisa lebese, halofo le halofo, tranelate kapa lebese le nonneng ha u pheha kapa u noa. Lebese le ntlafalitsoeng le na le phofo ea lebese le omileng e sa tlatsitsoeng.
• Abela botoro ea peanut lihlahisoa tsa bohobe kapa u e sebelise e le ho ina bakeng sa meroho le litholoana tse tala. Kenya botoro ea peanut ho lisosese kapa u e sebelise ho waffles.
• Lebese le khutsitsoeng la lebese le eketsa liprotheine. Leka ho eketsa likhaba tse 2 tsa phofo ea lebese le omeletseng ntle le palo ea lebese le tloaelehileng lipepising.
• Kenya marshmallows ho litholoana kapa chokolete e chesang. Kenya morara o omisitsoeng, matsatsi, kapa linate tse khethiloeng le tsoekere e sootho ho lijo-thollo tse chesang kapa tse batang, kapa u li fe lijo tse bobebe.
• Teaspoon (5 g) ea botoro kapa majarine e eketsa li-calories tse 45 lijong. E kopanya le lijo tse chesang tse kang sopho, meroho, litapole tse khotliloeng, lijo-thollo tse phehiloeng le raese. Sebeletsa lijo tse chesang. Bohobe bo chesang, li-pancake kapa li-waffles li monya botoro e ngata.
• Sebelisa tranelate e bolila kapa yogurt meroho e kang litapole, linaoa, lihoete kapa squash. E ka sebelisoa joalo ka moaparo oa litholoana.
• Nama e nang le bohobe, khōhō le tlhapi li na le lik’hilojule tse ngata ho feta tse besitsoeng kapa tse halikiloeng ka ho hlaka.
• Kenya chisi e eketsehileng ka holim'a pizza e lokisitsoeng ka serame.
• Kenya mahe a phehiloeng ka thata a phehiloeng ka thata le li-cubes ho salate e lahliloeng.
• Sebeletsa chisi ea kottage ka litholoana tse kenngoeng ka makotikoting kapa tse ncha.
• Kenya chisi tse halikiloeng, tuna, shrimp, crabmeat, nama ea khomo ea fatše, ham e halikiloeng kapa mahe a phehiloeng a halikiloeng ho lisoso, raese, casseroles le noodle.

Egan ME, Schechter MS, Voynow JA. Cystic fibrosis. Ka: Kliegman RM, St. Geme JW, Blum NJ, Shah SS, Tasker RC, Wilson KM, bahlophisi. Buka ea Nelson ea Pediatrics. La 21 Ed. Philadelphia, PA: Elsevier; 2020: khaolo ea 432.

Hollander FM, de Roos NM, Heijerman HGM. Mokhoa o nepahetseng oa phepo e nepahetseng le cystic fibrosis: bopaki ba morao-rao le likhothaletso. Curr Opin Pulm Med. 2017; 23 (6): 556-561. PMID: 28991007 e fetotsoe.ncbi.nlm.nih.gov/28991007/.

Rowe SM, Hoover W, Solomon GM, Sorscher EJ. Cystic fibrosis. Ka: Broaddus VC, Mason RJ, Ernst JD, et al, li-eds. Buka ea Bongaka ea Phefumoloho ea Murray le Nadel. La 6th. Philadelphia, PA: Elsevier Saunders; 2016: khaolo ea 47.