Kalafo bakeng sa myopathy ea nemaline

Litaba

• Matšoao a myopathy ea nemaline
• Matšoao a ntlafatso ho myopathy ea nemaline
• Matšoao a ho mpefala ha myaline myopathy

Kalafo ea myopathy ea nemaline e lokela ho tataisoa ke ngaka ea bana, tabeng ea ngoana le ngoana, kapa ke ngaka ea masapo, haeba motho e moholo a etsoa eseng ho phekola lefu lena, empa ho imolla le ho alafa matšoao, ho ntlafatsa boleng ba bophelo.

Hangata, kalafo e qalisoa ka linako tsa physiotherapy ho thusa ho matlafatsa mesifa e fokolisitsoeng ke ho ikoetlisa ka tsela e ikhethileng e fetotsoeng ke physiotherapist.

Ntle le moo, ho latela matšoao a ka hlahang, kalafo e ka etsoa hape ka:

• Ts'ebeliso ea CPAP: ke sesebelisoa se nang le mask e sebelisoang maemong a itekanetseng le a matla ho thusa ho hema, haholo nakong ea boroko. Ithute haholoanyane ho: CPAP;
• Ts'ebeliso ea setulo sa likooa: Hoa hlokahala maemong a nemaline myopathy e bakang bothata ba ho tsamaea ka lebaka la bofokoli ba mesifa ea leoto;
• Ho beoa ha gastrostomy tube: e na le tube e nyane e kentsoeng ka kotlolloho ka mpeng e lumellang ho fepa maemong a matla ka ho fetisisa;
• Ho ja lithibela-mafu: li sebelisoa maemong a mang ho alafa mafu a phefumolohang, a kang pneumonia, a atisang ho ba teng ka lebaka la mathata a ho hema a bakoang ke myopathy.

Maemong a boima ka ho fetisisa, ho kanna ha hlokahala hore u lule sepetlele ho etsa kalafo e nepahetseng le ho qoba mathata a tebileng, joalo ka ho ts'oaroa ke phefumoloho, ho behang bophelo ba mokuli kotsing.

Matšoao a myopathy ea nemaline

Matšoao a mantlha a myaline myopathy a kenyelletsa:

• Bofokoli ba mesifa, haholo-holo matsohong le maotong;
• Ho phefumoloha ho thata kapa ho koenya;
• Ho lieha ho ntlafatsa;
• Ho thata ho tsamaea.

Ntle le matšoao ana, ho boetse ho tloaelehile hore likarolo tse ling li hlahe, joalo ka sefahleho se sesesaane, 'mele o moqotetsane, ponahalo e bulehileng ea molomo, leoto le sekoti, sefuba se tebileng le nts'etsopele ea scoliosis kapa lefu la masapo.

Matšoao hangata a hlaha hang kamora ho hlaha hobane ke lefu la lefutso, empa maemong a mang, matšoao a pele a ka hlaha feela ha a se a le moholo.

O ho hlahlojoa ha myopathy ea nemalitic e etsoa ka ts'oaetso ea mesifa ha ho na le matšoao a ho belaella lefu lena, haholoholo ha ho lieha ho hola le ho fokola ha mesifa khafetsa.

Matšoao a ntlafatso ho myopathy ea nemaline

Ha ho na matšoao a ntlafatso ho nemaline myopathy, hobane lefu lena ha le ntlafale. Leha ho le joalo, matšoao a ka lokisoa ka kalafo, a lumella bophelo bo betere.

Matšoao a ho mpefala ha myaline myopathy

Matšoao a ho mpefala ha myaline myopathy a amana le mathata, joalo ka tšoaetso le ho ts'oaroa ke phefumoloho, ka hona ho kenyelletsa feberu e kaholimo ho 38ºC, ho thatafalloa ke ho hema, ho hema ho sa tebang, menoana e putsoa le sefahleho.