Tsela ea ho phekola liphetoho tse bakoang ke lefu la Beckwith-Wiedemann

Litaba

• Tlhahlobo ea lefu la Beckwith-Wiedemann

Kalafo ea lefu la Beckwith-Wiedemann, e leng lefu le sa tloaelehang la tlhaho le bakang ho eketseha ha likarolo tse ling tsa 'mele kapa litho, le fapana ho latela liphetoho tse bakoang ke lefu lena, ka hona, kalafo hangata e tataisoa ke sehlopha se tsoang ho litsebi tse' maloa tsa bophelo bo botle. e ka kenyelletsa ngaka ea bana, ngaka ea pelo, ngaka ea meno le lingaka tse ngata tse buoang, mohlala.

Kahoo, ho latela matšoao le mathata a bakoang ke lefu la Beckwith-Wiedemann, mefuta ea mantlha ea kalafo ke:

• Ho fokotsa maemo a tsoekere maling: liente tsa serum le tsoekere li etsoa ka kotlolloho mothapong le ho thibela ho haella ha tsoekere ho baka liphetoho tse tebileng tsa methapo;
• Li-hernias tsa embilical kapa tsa inguinal: kalafo hangata ha e hlokahale hobane hernias e ngata e nyamela selemong sa pele sa bophelo, leha ho le joalo, haeba hernia e ntse e tsoela pele ho eketseha ka boholo kapa haeba e sa nyamele ho fihlela lilemo tse 3, ho kanna ha hlokahala hore ho etsoa opereishene;
• Leleme le leholo haholo: Ts'ebetso e ka sebelisoa ho lokisa boholo ba leleme, leha ho le joalo, e lokela ho etsoa feela kamora lilemo tse 2. Ho fihlela lilemong tseo, u ka sebelisa li-nipples tsa silicone ho thusa lesea la hau ho ja habonolo;
• Mathata a pelo kapa masapo: meriana e sebelisetsoa ho alafa bothata ba mofuta o mong le o mong mme e tlameha ho nooa bophelo bohle. Maemong a boima ka ho fetisisa, ngaka e ka khothaletsa ho etsa opereishene ho lokisa liphetoho tse tebileng pelong, mohlala.

Ntle le moo, masea a hlahileng a nang le lefu la Beckwith-Wiedemann a na le monyetla oa ho ba le mofetše, ka hona haeba kholo ea hlahala e ka fumanoa, ho kanna ha hlokahala hore ho etsoe opereishene ho tlosa lisele tsa hlahala kapa kalafo tse ling tse kang chemotherapy kapa therapy ea radiation.

Leha ho le joalo, kamora kalafo, masea a mangata a nang le lefu la Beckwith-Wiedemann a hola ka mokhoa o tloaelehileng, a se na mathata a ho ba motho e moholo.

Tlhahlobo ea lefu la Beckwith-Wiedemann

Ho fumanoa ha lefu la Beckwith-Wiedemann ho ka etsoa feela ka ho shebella mathata a teng kamora hore ngoana a hlahe kapa ka liteko tsa tlhahlobo, joalo ka ultrasound ea mpeng.

Ntle le moo, ho netefatsa tlhahlobo ea lefu lena, ngaka e ka boela ea laela tlhahlobo ea mali ho etsa liteko tsa lefutso le ho lekola hore na ho na le liphetoho chromosome 11, kaha ena ke bothata ba lefutso bo qalileng ho lefu lena.

Beckwith-Wiedemann syndrome e ka fetela ho batsoali ho ea ho bana, kahoo haeba motsoali e mong a bile le lefu lena e sa le lesea, tlhabollo ea lefutso e khothaletsoa pele a ima.