Lefu la Charcot-Marie-Tooth

Litaba

• Kamoo e iponahatsang
• Kalafo e etsoa joang
• Mefuta e meholo

Boloetse ba Charcot-Marie-Tooth ke lefu la methapo le methapo le amang methapo le manonyeletso a 'mele, le bakang bothata kapa ho se khone ho tsamaea le bofokoli ba ho ts'oara lintho ka matsoho.

Hangata ba nang le lefu lena ba hloka ho sebelisa setulo sa likooa, empa ba ka phela lilemo tse ngata le matla a bona a kelello a bolokiloe. Kalafo e hloka meriana le kalafo ea 'mele bophelo bohle.

Kamoo e iponahatsang

Matšoao a ka bonts'ang lefu la Charcot-Marie-Tooth a kenyelletsa:

• Liphetoho maotong, joalo ka kobe e bohale haholo ea leoto le manala a menoana;
• Batho ba bang ba thatafalloa ke ho tsamaea, ka ho oa khafetsa, ka lebaka la ho hloka botsitso, ho ka bakang maqhubu kapa ho robeha maqaqailaneng; ba bang ha ba khone ho tsamaea;
• Ho thothomela matsohong;
• Bothata ba ho hokahanya motsamao oa matsoho, ho thatafalletsa ho ngola, ho tobetsa kapa ho pheha;
• Bofokoli le mokhathala khafetsa;
• Lumbar bohloko ba mokokotlo le scoliosis le tsona lia fumaneha;
• Mesifa ea maoto, matsoho, matsoho le maoto e theotsoe tlaase;
• Fokotsa kutloisiso ea ho ama le mocheso phapang maotong, matsoho, matsoho le maoto;
• Litletlebo tse kang mahlaba, likerempe, ho hlohlona le ho ba shohloho hohle 'meleng li tloaelehile bophelong ba letsatsi le letsatsi.

Se tloaelehileng haholo ke hore ngoana o hola ka mokhoa o tloaelehileng mme batsoali ha ba belaele letho, ho fihlela lilemo tse ka bang 3 tsa lilemo matšoao a pele a qala ho hlaha a le bofokoli maotong, ho oa khafetsa, ho liha lintho, ho fokotseha ha molumo oa mesifa le lipontšo tse ling tse bontšitsoeng kaholimo.

Kalafo e etsoa joang

Kalafo ea Lefu la Charcot-Marie-Tooth e lokela ho tataisoa ke ngaka ea methapo, mme ho ka bonts'oa ho noa meriana e thusang ho sebetsana le matšoao, hobane lefu lena ha le na pheko. Mefuta e meng ea kalafo e kenyelletsa neurophysiotherapy, hydrotherapy le kalafo ea mosebetsing, mohlala, tse khonang ho imolla ho sa thabiseng le ho ntlafatsa bophelo ba motho ba letsatsi le letsatsi.

Hangata motho o hloka setulo sa likooa 'me ho ka bontšoa lisebelisoa tse nyane ho thusa motho ho hlatsoa meno, ho apara le ho ja a le mong. Ka linako tse ling ho ka etsoa opereishene e kopanetsoeng ho ntlafatsa tšebeliso ea lisebelisoa tsena tse nyane.

Ho na le litlhare tse 'maloa tse hanetsoeng batho ba nang le lefu la Charcot-Marie-Tooth hobane li mpefatsa matšoao a lefu lena ke ka hona ho noang meriana ho lokelang ho etsoa feela tlasa boeletsi ba bongaka le ka tsebo ea ngaka ea methapo.

Ntle le moo, lijo li lokela ho khothaletsoa ke setsebi sa phepo e nepahetseng hobane ho na le lijo tse mpefatsang matšoao, ha tse ling li thusa kalafong ea lefu lena. Selenium, koporo, livithamini C le E, lipoic acid le magnesium li lokela ho jeoa letsatsi le leng le le leng ka ho ja lijo tse kang linate tsa Brazil, sebete, lijo-thollo, linate, lamunu, sirilamunu, spinach, tamati, lierekisi le lihlahisoa tsa lebese, mohlala.

Mefuta e meholo

Hona le mefuta e fapaneng ea lefu lena ke ka hona ho nang le liphapang le lintlha tse itseng lipakeng tsa mokuli ka mong. Mefuta ea mantlha, hobane ke eona e atileng haholo, ke:

• Mofuta oa 1: e tšoauoa ka liphetoho mokokotlong oa myelin, o koahelang methapo, e fokotsang lebelo la phetisetso ea tšusumetso ea methapo;
• Mofuta oa 2: e khetholloa ka liphetoho tse senyang li-axon;
• Mofuta oa 4: e ka ama selaka sa myelin le li-axon, empa se e khethollang mefuteng e meng ke hore e iphetola haholo;
• Mofuta oa X: e khetholloa ka liphetoho tsa chromosome ea X, e matla ho feta banna ho feta basali.

Lefu lena le tsoela pele butle butle, 'me tlhahlobo ea lona e etsoa hangata bongoaneng kapa ho fihlela lilemo tse 20 ka tlhahlobo ea liphatsa tsa lefutso le tlhahlobo ea electroneuromyography, e kopiloeng ke ngaka ea methapo.