Motho ea Bakang Phephetso ea ALS O Khethiloe ke Likoloto Tsa Bongaka

Litaba

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Sebapali sa mehleng sa Boston College, Pete Frates, o ile a fumanoa a e-na le ALS (amyotrophic lateral sclerosis), e tsejoang hape e le lefu la Lou Gehrig, ka 2012. Lilemo tse peli hamorao, o ile a tla le khopolo ea ho bokella chelete bakeng sa lefu lena ka ho theha phephetso ea ALS eo hamorao ea fetoha ketsahalo ea litaba tsa sechaba.

Leha ho le joalo kajeno, ha Frates a bua ka ts'ehetso ea bophelo lapeng, lelapa la hae le thatafalloa ho fumana $ 85,000 kapa $ 95,000 ka khoeli e hlokahalang ho mo phelisa. "Lelapa lefe kapa lefe le ka robeha ka lebaka la sena," ntate oa Frates, John, o bolelletse CNN e amanang le WBZ. "Ka mor'a lilemo tse 2 le halofo tsa mofuta ona oa litšenyehelo, e fetohile e sa tsitsang ho hang bakeng sa rona. Re ke ke ra khona ho e lefella."

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Mohopolo oa phephetso ea ALS o ne o le bonolo: motho o lahlela nkho ea metsi a batang ka leqhoa lihloohong tsa hae ebe o beha ntho eohle mecheng ea litaba ea sechaba. Ebe ba phephetsa metsoalle le ba lelapa ho etsa se tšoanang kapa ho fana ka chelete ho Mokhatlo oa ALS. (E amanang: Batho ba Rato ba Ratoang ba 7 Ba Nkileng Bothata ba ALS Ice Bucket)

Nakong ea libeke tse robeli, mohopolo o bohlale oa Frates o bokelletse limilione tse fetang $ 115 ho leboha batho ba limilione tse 17 ba nkileng karolo. Selemong se fetileng, Mokhatlo oa ALS o phatlalalitse hore menehelo e ba thusitse ho tseba hore na ke lefutso le ikarabellang bakeng sa lefu lena le etsang hore batho ba lahleheloe ke taolo ea mesifa, mme qetellong ba amoha bokhoni ba bona ba ho ja, ho bua, ho tsamaea le ho qetella ba heme.

Eseng hoo feela empa pejana khoeling ena FDA e phatlalalitse hore haufinyane ho tla fumaneha setlhare se secha ho alafa ALS-khetho ea pele ea kalafo e ncha e fumanehang lilemong tse fetang tse mashome a mabeli. Ka bomalimabe, ho thata ho tseba hore na sena se tla thusa Frates ka nako. Mothehi e mong oa phephetso, Anthony Senerchia ea lilemo li 46, o hlokahetse qetellong ea Pulungoana 2017 kamora ntoa ea lilemo tse 14 le lefu lena.

Le ha ho bitsa $ 3,000 ka letsatsi ho mo boloka a phela, mosali oa Frates, Julie o hana ho fallisetsa monna oa hae setsing, leha e ka ba theko e tlase bakeng sa lelapa. "Re mpa re batla ho mo boloka hae le lelapa la hae," o bolelletse WBZ, a re ho qeta nako le morali oa hae ea lilemo li 2 ke e 'ngoe ea lintho tse' maloa tse etsang hore Frates a loanele bophelo ba hae.

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Hona joale, lelapa la Frates le boetse le fihlella sechaba ka ho theha letlole le lecha ka Mokhatlo oa ALS ho thusa malapa a kang a Pete ho khona ho boloka baratuoa ba bona ba le hae. E reheletsoe ka Home Health Care Initiative, sepheo sa eona ke ho fihlela $ 1 milione, 'me mokoloto oa lichelete o tla ts'oaroa ka Phuptjane 5. Tlohela ho Mokhatlo oa ALS bakeng sa lintlha tse ling.

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