Sengoli: Roger Morrison
Letsatsi La Creation: 1 September 2021
Ntlafatsa Letsatsi: 14 November 2024
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Tuberous sclerosis le mokhoa oa ho phekola ke eng - Bophelo
Tuberous sclerosis le mokhoa oa ho phekola ke eng - Bophelo

Litaba

Tuberous sclerosis, kapa lefu la Bourneville, ke lefu le sa tloaelehang la liphatsa tsa lefutso le khetholloang ke kholo e sa tloaelehang ea lihlahala tse kotsi lithong tse fapaneng tsa 'mele tse kang boko, liphio, mahlo, matšoafo, pelo le letlalo, tse bakang matšoao a kang lefu la sethoathoa, tieho ea kholo kapa cysts ka liphio, ho latela sebaka se amehileng.

Lefu lena ha le na pheko, empa le ka phekoloa ka litlhare ho fokotsa matšoao, joalo ka litlhare tse khahlanong le ts'oaetso, mohlala, ka psychology, physiotherapy kapa linako tsa kalafo ea mosebetsing, ho ntlafatsa bophelo.

Ho na le lefu le leng hape le bakang matšoao a ts'oanang le kholo ea lihlahala 'meleng, leha ho le joalo, le ama feela letlalo mme le tsejoa e le neurofibromatosis.

Liso tsa letlalo tse khethollang Tuberous Sclerosis

Matšoao a mantlha

Matšoao a tuberous sclerosis a fapana ho latela sebaka sa lihlahala:


1. Letlalo

  • Mabala a bobebe letlalong;
  • Ho hola ha letlalo ka tlas'a lenala kapa ho le pota;
  • Liso sefahlehong, tse tšoanang le makhopho;
  • Matlalo a bofubelu letlalong, a ka eketsang ka boholo le ho hola.

2. Boko

  • Sethoathoa;
  • Ho lieha ho ntlafatsa le mathata a ho ithuta;
  • Ho hloka botsitso;
  • Ho ba mabifi;
  • Schizophrenia kapa autism.

3. Pelo

  • Liphetolelo;
  • Arrhythmia;
  • Ho utloa phefumoloho e khuts'oane;
  • Ho tsekela;
  • Ho akheha;
  • Bohloko ba sefuba.

4. Matšoafo

  • Khohlela e sa khaotseng;
  • Ho ikutloa u phefumoloha ha nakoana.

5. Liphio

  • Moroto o nang le mali;
  • Keketseho ea makhetlo a ho ntša metsi, haholo-holo bosiu;
  • Ho ruruha ha matsoho, maoto le maqaqailana.

Ka kakaretso, matšoao ana a hlaha bongoaneng mme tlhahlobo e ka etsoa ka liteko tsa liphatsa tsa lefutso tsa karyotype, cranial tomography le magnetic resonance. Leha ho le joalo, ho boetse ho na le linyeoe moo matšoao a ka bang bonolo haholo mme a se ke a bonoa ho fihlela motho e moholo.


Nako ea bophelo ke eng

Tsela eo tuberous sclerosis e hlahang ka eona e fapana haholo, mme e ka bonts'a matšoao a fokolang ho batho ba bang kapa ea ba moeli o moholo ho ba bang. Ntle le moo, matla a lefu lena le ona a fapana ho ea ka setho se amehileng, 'me ha se hlaha bokong le pelong hangata se ba matla le ho feta.

Leha ho le joalo, tebello ea bophelo hangata e phahame, kaha ke ka seoelo ho hlahang mathata a ka behang bophelo kotsing.

Kalafo e etsoa joang

Kalafo ea lefuba la methapo e reretsoe ho fokotsa matšoao a lefu lena le ho ntlafatsa bophelo ba mokuli. Kahoo, ho bohlokoa hore motho a beoe leihlo mme a be le lipuisano khafetsa le ngaka ea methapo, setsebi sa methapo ea mafu kapa setsebi sa pelo, mohlala, ho bonts'a kalafo e nepahetseng.

Maemong a mang, kalafo e ka etsoa ka meriana e loantšang ho ts'oaroa, joalo ka Valproate semisodium, Carbamazepine kapa Phenobarbital, ho thibela ho oela kapa litlhare tse ling, joalo ka Everolimo, e thibelang kholo ea lihlahala bokong kapa liphio, mohlala. mohlala. Tabeng ea lihlahala tse holang letlalong, ngaka e ka laela tšebeliso ea setlolo le Sirolimus, ho fokotsa boholo ba lihlahala.


Ntle le moo, physiotherapy, psychology le kalafo ea mosebetsing li bohlokoa ho thusa motho ho sebetsana ka katleho le lefu lena le ho phela hantle.

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